Josh has had a very unsettled day today after a very comfortable day yesterday. We had to stop his subcutaneous fluids as the line stopped working and a second attempt failed also. He has had an increase in morphine infusion and had several bolus doses also yet is still not comfortable. His breathing is laboured and very mucousy which he is finding painful though he is also on medication for that. Everyone has been great coming over in the middle of the night and both the mums have been a great help too. Anika is more unsettled and is being a bit disruptive, I think she needs to find there is closure to Josh's pain (as we all do) as it is so hard to fathom how he keeps fighting in spite of terrible pain.
Wish him peace and love.
Hannah
PS Congratulations to Fee, Jas, Kody and Immie who have discovered they are having a baby boy! He looks so gorgeous even at 20weeks gestation. Well done, you are so clever!!!
6 comments:
I am a stranger (from Perth) who found your website quite by accident. I have been absolutely touched by your son's story, and the honesty with which you have told it (I have tears running down my eyes at the moment!)
I hope you know that through this very tough time there are people out there that you don't know and who you will never meet (well...probably) who are praying for you and wishing you and your family well.
xoxoxoxoxoxoxoxoxoxoxox (as many or as few as you and your family need/want) from the cosmos!
My dearest Wizzys,
We received the sad news last night. While Josh's story may be completed, it will continue to echo through all of the lives he has touched.
Our thoughts and tears are with you.
Love,
Desma and Jason
Hannah Peter and family . We are deeply saddened to hear of Joshs passing but feel some relif that the precious lil man is in no more pain. It is just not right for parents to have to say goodbye to their children before we go. Our heart is aching for you all and our love is with you. Love and our support to you all
Laura Jason Damon and Angel Baby Savanna XXXx
Dear Josh, your journey has been very difficult, but your courage, strength and personality were an inspiration to read. Your whole family is inspirational. Hugs to you all.
Sleep soundly now, pain free forever xxx
Moraes family, Melbourne
Hannah, Peter and Family,
You are in my thoughts and prayers. May God give you comfort and strength to endure this tragic loss. Josh will live on in the hearts and minds of all who have been inspired by his courage.
Fly free on angel's wings, Josh.
Love, Barbara
(Lea's cousin from Bundaberg)
Dear Hannah, Peter, & Family,
Just wanted to say that I'm thinking of you all especially at this time.
Josh was such a cheeky & definitely a strong willed little man!
Anika is sure going to love reading the stories from everyone in the years to come!
Love & thoughts
Shell
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